News

The second PLHIV conference

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28.04.2012

The second PLHIV conference of Serbia – supported by the Global Fund, and organized by the Youth of Yazas and USOP , took place in Belgrade, May 19-21. The conference was officially opened by the president of the Assembly and acting president of the Republic of Serbia, Dr. Slavica Đukić Dejanović, along with other representatives of the government and non-government sector. In the opening of the conference, some of HIV pandemic data was presented, which showed that data held by different sectors significantly differ and is differently understood.

During the three day conference, lecturers from the country and the region spoke of (non)availability of the modern ARV therapy, diagnostics and treatment, human rights, discrimination, as well as about the aspects and perspectives of regional networking.

Dr. Mariane Mardarescu from Romania talked about the specific epidemic situation in Romania, and a very balanced percentage of men and women infected. She stressed that an auction of all medicines was organised in Romania few years ago, which resulted with very favourable prices in the country.
Lack of modern therapies and diagnostics in Serbia which invoked the highest interest of the participants. „When we had medicine procurement problems, I publically said that no patient will be a single prescription, and such determination led to finding solutions and therapies abailable“ said Dr. Denes Benhegyi from Hungary – receiving a standing ovation.

Member of the City council of Belgrade, Nataša Milošević and city vice-secretary Aleksandar Stefoski organised a reception in Stari Dvor for 80 members of the conference, and repeatedly stressed the importance of improving the position of people „diseased by HIV“.

Four activists of the Q-Club from Niš, Jagodina and Belgrade participated on the conference, while the executive director, Nenad Petković, gave a lecture on human rights. He stressed the role and significance of fighting for human rights in HIV/AIDS, and said that our system is rather specific in that domain.
The Second PLHIV conference opened a lot of subjects related to HIV, but our impression is that the state officials gave only declarative support to the position of PLHIV, and their presence was not used to get the answers for lack of solutions of chronic problems in the healthcare system and treatment of PLHIV. This approach demonstrates the lack of coordination in the national response to HIV, lack of political will and expertise for radical improvement of the position of people living with HIV in Serbia.
 

 

Press conference: Together for better health – who is playing with our lives?

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28.03.2012

Press conference “Together for better health – who is playing with our lives” took place today in the Media Center. The Conference was a joint effort of several patient organizations: Zdravoskop – Zdravlje Club, the Q-Club (Center for affirmation of positive living), Hronos (Association of patients with chronic viral hepatitis), UKSUS (Association of patients with Crohn's disease and ulcerative colitis) and the Association of patients with rheumatoid arthritis. These associations addressed the public and the relevant institutions regarding the problems in procurement of medications and therapy availability for chronic diseases, and appealed for an immediate solution, also pointing out that health and even lives of several thousands of patients are at stake.

“Now that we are going through an economic crisis, and when treatment budgets are limited, we hope that the patients living with difficult diseases will not be taken of priority lists. From the relevant institutions we expect immediate action for solving these extremely urgent problems. Even though the election campaign is under way, the health problems cannot be “frozen” and wait for a solution after the elections. The current state has put in danger the patient’s basic human rights – the right to treatment and right to life (section 25. of the Universal Declaration on Human Rights of the UN), stressed Zorica Markovic from the Association Zdravoskop – Zdravlje Club.

Serbia is one of the countries where medicines get to the market latest. From the moment of registration of a life-saving drug – that has proven efficient and cost-effective in other countries – to the moment of inclusion of that drug in the positive list – making it available to patients – sometimes takes up to several years. We all know difficult patients can’t wait that long.

It is very important to stress that a lot of people suffering from chronic diseases belong to the most productive segment of the population (second to fourth decade of life), which makes it important to provide adequate and timely treatment, and to enable inclusion to normal life, family life, work, and maximal contribution to the society. Progress in understanding an illness and continuous therapy provide faster recognition and more effective treatment of these patients, thus improving their quality of life.

The conference had significant media coverage, following reports on all major TV networks and press editions. We hope this action will have an impact in the relevant institutions as well, and we will by all means continue to fight for a better position of patients in Serbia together.
 

 

HIv in Europe conference 2012

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23.03.2012

HIV in Europe is a pan-European initiative initiated in Brussels in 2007. The initiative provides a European platform for exchange and activities to improve early diagnosis and earlier care of HIV across Europe. The initiative is directed by an independent group of experts with representation from civil society, policy makers, health professionals and European public health institutions.

The overall objective of HIV in Europe is to ensure that HIV positive patients enter care earlier in the course of their infection than is currently the case, as well as to study the decrease in the proportion of HIV positive persons presenting late for care.

The Conference marked 5 years of the initiative joining civil society, policy makers, health professionals and European public health institutions to enhance the evidence base around topics related to optimal testing and earlier care of HIV.

 

Some of the most important data presented during the Conference were that on pan-European level newly registered HIV infections occur as late presenters, and that countries of East Europe still have extremely low testing rates. Shocking for all participants were presentations from some countries of East Europe showing that, for instance in Russia, HIV treatment is available for less then 23% of HIV infected people, while still the most sensitive groups are IV drug users and MSM population.

Details on the results of the Conference, including presentations and posters presented can be found on the official web page of the initiative:
http://www.hiveurope.eu/Copenhagen2012Conference/tabid/115/Default.aspx

Nenad Petković from the Q-club was our representative on the Conference, and he held a presentation on employment related HIV/AIDS issues. His presentation was part of the meeting dedicated to member countries of HIV Europe.

 

 

Therapy Problems of People Living with HIV

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21.03.2012

On March 20th a report piece of Aleksandra Gazivoda appeared on TV B92 regarding problems of patients living with HIV and lack of adequate therapy options. Along with the problems of PLHIV population the piece talked about similar problems other patients living with chronic diseases face.

The video report can be seen on our you tube chanal here
 

 

HIv in Europe conference 2012

HIV in EU 2012.jpg
23.03.2012

HIV in Europe is a pan-European initiative initiated in Brussels in 2007. The initiative provides a European platform for exchange and activities to improve early diagnosis and earlier care of HIV across Europe. The initiative is directed by an independent group of experts with representation from civil society, policy makers, health professionals and European public health institutions. The overall objective of HIV in Europe is to ensure that HIV positive patients enter care earlier in the course of their infection than is currently the case, as well as to study the decrease in the proportion of HIV positive persons presenting late for care.

The Conference marked 5 years of the initiative joining civil society, policy makers, health professionals and European public health institutions to enhance the evidence base around topics related to optimal testing and earlier care of HIV.  Some of the most important data presented during the Conference were that on pan-European level newly registered HIV infections occur as late presenters, and that countries of East Europe still have extremely low testing rates.

Shocking for all participants were presentations from some countries of East Europe showing that, for instance in Russia, HIV treatment is available for less then 23% of HIV infected people, while still the most sensitive groups are IV drug users and MSM population.

Details on the results of the Conference, including presentations and posters presented can be found on the official web page of the initiative:
http://www.hiveurope.eu/Copenhagen2012Conference/tabid/115/Default.aspx

Nenad Petković from the Q-club was our representative on the Conference, and he held a presentation on employment related HIV/AIDS issues. His presentation was part of the meeting dedicated to member countries of HIV Europe.

 
 
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